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Category Archives: speech-language pathology

To all the Dads, Mamas, Siblings and Special Ones

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To All the Dads, Mamas, Siblings & Special Ones:

You’re on my heart this week. You’re on my mind. 

For 14 1/2 years, I’ve visited your homes, entered your sacred spaces, assessed and treated your special little ones. My days as a speech-language therapist are coming to an end. At least for now, maybe forever. Only God knows.

But you, you will never leave my heart.

You’ve made a lasting impression. You’ve changed who I am. You’ve molded me into a better person. You’ve altered my heart for humanity in a way no one else could.

You see, you are special. You are like no other.

Special dads, I’ve seen you. All the varieties of you. The worker dad. The business dad. The hands on, loves like a mama dad. The dad who’s not sure what to think. The dad who’s not sure what to do. The dad who knows exactly what to do. The dad whose eyes tell it all. The dad who knows his son, his daughter’s like no other. The dad who looks his child in the face and sees it all. And loves anyway. Even when it’s hard. Even when being a dad’s nothing like you expected it to be. I see you longing to do something, anything to help. I see you doing all you can, everything you can. I see you working hard for your family, with your family, providing stability and hope, even when the needs seem endless. I’ve seen you, dear dad, you’re a light, a strong presence in your household. Your child needs you. Your child thrives on your presence. You might not think so, but you know just what to do with that special child of yours. You are man, yes man. Still man, even though life’s thrown you a curve ball. Man, even more so. Man, because you stay, you stick with it, you do what’s right and honorable. And you love your family quietly, humbly. Because you know life’s course can change in an instant. Yes, you are a special dad. I see you. Thank you for who you are.

So much love

Special mamas, I’ve seen you. Take heart, mama. Take heart. You’re unique. You’re extraordinary. There’s no one quite like you, mama. What a lover you are. You love to no end. You fix boo boos and kiss cheeks, burp and clean spilled milk, pack lunches, transport and balance work and home life like any other mama. But you manage much more, mama. Therapies and visual schedules, meds and IEPs, evaluation reports and flash cards, you’ve seen it all now, haven’t you mama? You never knew motherhood would be quite like this. You wonder when your mama bear heart will be at peace, at ease with this special one’s needs you’ve been entrusted. Mama, you’re so good, you don’t even know how good you are. You’ve cried tears and held them back. You’ve worked like a dog. You’ve pushed and pulled back. You’ve prodded and been patient. You’ve known when hugs are today’s prescription. And you’ve known when hugs are an escape from the work ahead. Mama, you’ve done everything you can. Mama, you’re doing great. Mama, you are awesome, irreplaceable. Take care, mama. Make sure you’re doing something for you. Take care, mama, for you’re the cornerstone of your family’s heart and soul. Mama, you’re special. I see you. Thank you for who you are.

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Special siblings, I’ve seen you. Oh, how I’ve seen you. I’ve seen you in the corner, on the side, by the wayside. I’ve seen you waiting, wishing to enter in. I’ve seen you play, and I’ve seen you disappear. I’ve seen you ask and be turned away. I’ve seen your brilliance and your beauty. I’ve seen every bit of your potential flash before me. Don’t forget you’re special, too, dear one. I’ve seen your heart shine bright on the darkest of days. I’ve seen you help and teach and reach out and love unconditionally, like only a sibling of a special knows how to do. I know your heart, special sibling. I understand your position. Who are you? What’s unique about you? What makes you tick and light up? What causes you to keep on keeping on when everything feels impossible and forever? Cling to those truths, dear sibling. The years may be long, or they may be short. Whatever your truth ends up being, shine your light, special sibling. Your life is precious. Your life has purpose. There’s no mistake about your place. There’s a reason you’re there, right there, with that family of yours. Let your voice be heard, special sibling, let your place and your purpose be known. And don’t forget, you’re not alone. Yes, most definitely yes, you’re special. I see you siblings. Thank you for who you are.

Today she discovered something amazing

Special ones, I’ve seen you. Oh yes, I’ve seen you. Consider your position an honor. You teach us how to be gentler, kinder, more respectful and honoring of diversity in a world that feels monotone at times. You teach us how to be patient and tender, loving beyond measure. You know what it’s like to be poked and prodded, tested, drilled and worked hard. You’re constantly striving to live up to the measuring stick of “normal,” “typical” and “neurotypical,” but truth be told, you’re anything but typical. There’s no need to measure up, special ones. You’re you. Work hard, yes. Do what you can, yes. Exceed their expectations, yes. Listen to your dads and mamas, your special siblings and teachers, your therapists and your doctors, but know this, special ones. God sent you, created you just as you are, to reveal love, to show grace, to bestow blessing. You’re an angel on earth, here for reasons most can’t fathom. You’re more than a number, score or position on any standardized chart. You’re a treasure, a gem, one to be remembered for all the ages. Forgive us if we neglect your humanity. Forgive us if we ignore your limits. Forgive us if we don’t know, if we don’t quite understand what it is you need. You are accepted, as you are. You’re loved, whether you progress or don’t progress at all. Whether you eventually achieve scores “within normal limits” or continue presenting with “significant delays,” you’re deemed worthy. Because you are worthy. Yes, you are special. I see you. Thank you for who you are.

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Dear special family, I’ve seen you. We’ve worked hard together, we’ve loved together, we’ve faced trials and tribulations. We’ve sat in silence, laughed and cried with joy, wondered and wandered a time or two. We’ve known and we’ve not known at all. We’ve succeeded and we’ve missed the mark. We’ve fought for what’s best, for what’s right, for what’s needed and necessary. We’ve made calls, referrals and investigations into the causes of these needs. We’ve drilled and done the same things over and over and over again. It’s a fight worth fighting. It’s a cause worthy of care. It’s a life worth living. Every bit of our work together has been worth it.

But now, yes now, it’s time to say good bye. It’s time to set your family free to someone else who will do the therapy.

I may return, I may not. But this you must know. My decision’s not been easy. My decision’s not been light. My heart’s heavy and light all at once this week. For I’m leaving you, but following the call God has on my life to write, photograph, live, love and be an advocate for the voiceless of this world.

This, I promise. I will not leave you. I will not forsake you. I will not forget you and your special family. I will be a voice for you. I will help the world see your beauty for what it is – pure, raw, lovely, extravagantly and exquisitely unique.

What God has in store for the days ahead, I’m not exactly sure. But I know one thing for sure. I will continue to be your advocate. From this day forward. You can count on me to see you, to remember you, to acknowledge you and constantly remark that you are created beautiful, wholly unique, special like no other.

Thank you, special family.

Your place in my heart is permanent and prominent. Your story, it’s a beautiful treasure I honor like no other.

pinksig

 

 

 

NOTE: The two beautiful photographs of the girl who has down syndrome are courtesy of Andrea’s Photography on Flickr’s Creative Commons.

Margaret Florip - A beautiful message, that means so much to so many. Thank you for sharing.December 18, 2014 – 12:39 am

Nicole Marie Newfield - Amy, I am going to print this out and post it at work. Love these words and know these truths. Thank you for writing this!December 18, 2014 – 12:06 am

Amy - I agree wholeheartedly, Diana. Thank you.December 17, 2014 – 8:59 pm

diana - Amen Amy. We don’t always know why certain people come into our lives or we into theirs but I always trust it is meant to be. Well done my friend and carry on!December 17, 2014 – 7:29 pm

My Life. Part Two.

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God began calling me to write all the way back to 2003. But I didn’t launch my blog until July 2012.

I wasn’t blind and deaf to the call at all. I was busy working as a speech therapist, buying houses, taking vacations, and having babies with my college sweetheart. I was busy living the American Dream.

The call to write continued. It was quiet. Nobody knew but me. But God was persistent.

After many years of feeling called, I began to wonder if I was imagining things, if I was daydreaming crazy visions out of thin air. To remind myself of the events I considered signs of the call, I combed through old journals and pieced together proof through the years. It was obvious. A story had unfolded. So I put it together tidy and titled it the only way I knew how.

A Possible Calling.

I’ve debated this calling. I’ve doubted it. Believe me. It’s been a journey.

I’ve sought wise counsel. I’ve prayed. I’ve thought, then thought some more. And bless his soul, I’ve talked to my husband about it hundreds of times.

I have a tendency to be a people pleaser, to do what’s “right” and “good” by all-American girl-next-door standards, so ultimately, I had to step away from all the voices, be still, and sit with God.

Yes, it was then that I knew. This is what God has planned for my life. This is what He wants me to do. This isn’t the American Dream, it’s a God-Sized Dream. All was good between me and God. He’d called me to write, and now, I would write even more. The dream was ready to take flight.

But making dreams reality hasn’t been a walk in the breeze. I could have given up by now, I could have given in. I could’ve said forget it, because all this wonder and worry isn’t worth it a bit. There’s no degree, no guarantee, no paved path, no pay for this way, at least for today.

When in doubt, I returned to the peace I experienced between me and God. I couldn’t ignore that. I couldn’t pretend those pieces of proof didn’t exist. I couldn’t disregard every pull of my heart for the last 12 years. I couldn’t deny this feeling I was supposed to transform my work life completely.

I knew very clearly, all the way back to August 2012, that changes were coming. My husband and I began discussing options. But it wasn’t until August 22, 2014, that we made our final decision.

My last day of work as speech-language pathologist will be December 18, 2014. 

I realize that statement is dramatic, feels permanent, and might concern people who believe I’m wasting my master’s degree and 14 1/2 years of on-the-job experience. Here’s what I want you to know. I’ve pondered each word of this post carefully. My husband and I have thought through this decision extensively and exhaustively. Rest assured. There’s always a chance I’ll return to speech therapy in the future. This may end up being a sabbatical. Or it may end up being permanent, an early retirement from speech therapy. Time will tell.

Here’s what I know for sure.

I’ve been working as a speech therapist for 14 1/2 years. I strongly believe that my work as a speech therapist has been training grounds for what’s to come. Nothing has been wasted. I’ve served my patients and families well, to the best of my ability. I’ve given them my 100%. We’ve worked hard together, we’ve loved together, we’ve been patient together, and we’ve made progress together. I’m grateful beyond measure. And I’ve learned oh so many things.

Who’s to say I won’t be called back to speech therapy someday?

But now, it’s time to take what I’ve learned and apply it elsewhere.

This is my life. Part two.

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HOME AND FAMILY

I’ve never considered myself a full-time stay-at-home mom type. I’ve worked the whole range of 1-5 days per week since we had our first child 12 years ago. But now, I’ll be dedicating more time to our home and family. I’d like to declutter and get life in order. I need whitespace to breath, be and create. I want to live more freely and love more deeply. I want hot homemade dinners, chocolate chip cookies after school, and summers free to roam with the kids while they’re still somewhat small. I want to hear my husband out when he comes home from work instead of tuning everything out because I’m so stressed out from the day. It’s time to inch my way through the ridiculously high stacks of books in our bedroom, and maybe I’ll finally have time to check out the women’s bible study I pass every Thursday morning on my way to work. I’d like to keep an even closer eye on our family finances. And I’d love to invest in friendship because it’s been on the back burner far too long.

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SPECIAL NEEDS PHOTOGRAPHY

In early June, it occurred to me that I’ve LOVED taking pictures my whole life, but constantly stuffed the dream of becoming a photographer down deep. So I’m pursuing this passion to the next level. I purchased my dream camera in September. Its capabilities are beyond my current abilities, people. And that’s a good thing. That’s what I wanted. I wanted a camera I can grow into. So I’m going to EXPLORE special needs photography. I’d like to use the skills I’ve gained in 14 1/2 years of speech therapy and take them to the next level. Instead of focusing on fixing deficits, I’d like to focus on the inherent beauty of special needs. I’m skilled at developing rapport quickly, and I’m comfortable in just about any family’s home. So I’d like to give this a whirl. My short-term goal is to give away a bunch of FREE special needs photo shoots so I can gain experience, build a portfolio of work, and determine if a part-time business is viable.

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WRITING

Writing will become my primary work focus. I’m currently publishing blog posts at a rate of 2x/week. My publishing frequency will likely increase to 3x/week by early to mid-2015. In September, I launched a new long-term vision for my blog. I’ll be writing content even tighter within that vision. I’d like to connect deeper with other writers, and I’d like to attend more local and national writing conferences as finances and schedules allow. I’ve been asked to lead and join writing groups locally and online, I’ve been encouraged to write books, and I’ve crossed paths with a few people who have indicated interest in partnering for special projects. Ultimately, I’d like to use my gift of writing to advocate for people whose voices need to be heard more loudly, and to encourage others to live out their purpose.

So these are my dreams.

This is my life. Part two.

From here on out, I’m leaving a lot more room for God to work. There’s no specific path I can take that will ensure success at home, with my family, in writing or photography. There’s nothing I can do to make any of these things happen the way I’ve envisioned. All I can do is trust God’s leading me in the right direction, use my gifts to the best of my ability, wait, and trust that in the end, it will all piece together into a beautiful life story.

This is the biggest leap of faith I’ve ever taken, by a landslide.

I’m living with the end in mind. So while part of me is scared to death because this is not perfect or certainexpected or known, a bigger part of me is excited and humbled beyond belief. Because I know I won’t regret this. I know it’s going to grow my faith by leaps and bounds. And I know God’s going to prove He’s greater than any dream I ever imagined.

So here I am. On the edge of something new. My part two.

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Tara Dorn - Congratulations on your Part Two! I can’t wait to see/read about all that God has in store for you! Prayers for you on this new journey.December 11, 2014 – 7:50 pm

Amy - Thanks so much, Missy!December 10, 2014 – 5:01 pm

Missy Sterling - Good luck! I’ve toyed with the idea of a photography side business and just haven’t made the time for it. Go get em!December 8, 2014 – 11:29 pm

Tom Baunsgard - Amy, Congratulations on making the transition from “Life Part 1″ . Well Done! I’m praying that “Life Part 2″ will fulfill you. By taking God’s lead as you have, i’m sure it will. Blessings Abound!December 7, 2014 – 1:01 am

Amy - Thank you, Debra. I think you’re right!December 6, 2014 – 6:06 am

Amy - Jen, your comment made me laugh! I didn’t even think twice about that “short-term goal!” And now that you pointed that out, I’m pretty sure there’s a long-term goal somewhere in that post, too. Guess I couldn’t help myself! :)December 6, 2014 – 6:05 am

Valerie Hubel - Amy, this is great! I am so excited to see what will come from all of this. I so appreciate your open heart to God and being willing to take this huge step of faith. Hang on for the ride! I am praying for you!December 6, 2014 – 3:43 am

Peggy Lynn Groenwold - I really respect your action of taking a breather from your job. It’s obvious God wants you in another profession… It’s very exciting Amy, to feel and acknowledge God’s plans!December 6, 2014 – 1:51 am

Cindy L Meester - Your spirit and skills will shine along your new path. Best wishes and congratulations!December 5, 2014 – 10:09 pm

Antonio Macias - Awesome!December 5, 2014 – 8:35 pm

Amy Patterson Boyd - So excited for you. I can’t wait to see all that God will do through you. I’ll keep you and your family in my prayers as you begin part 2.December 5, 2014 – 8:20 pm

Sandi Bishop - Our God is one of grand surprises. Bigger than any problem we encounter. Enjoy the journey!December 5, 2014 – 8:09 pm

Mary Katherine Boyle - What an adventure is ahead of you. What a joy you will bring to the world with your gentle soul and wise eyes.December 5, 2014 – 7:57 pm

Jen Fish - In the words of Stephen Curtis Chapman, “Saddle Up Your Horses”! So happy for you as you follow His leading. I love that you used the term “short term goal”. You are leaving speech language pathology, but it’s not leaving you : )December 5, 2014 – 6:31 pm

dibsondebs - The SLP in you will always be there and will just unfold in different ways. May this new journey be filled with wonderment, love, peace, fulfillment and happiness.December 5, 2014 – 6:09 pm

The Sweet Is Never As Sweet Without The Sour

This marks week three of Divine In The Daily’s 5-week guest post series titled Special Mamas! Every Wednesday in May, we’re honoring real-life mamas who have big hearts and stand bold and courageous in their unique mothering roles.

Two weeks ago, Jennifer Camp, blogger at You Are My Girls and mother of three from Northern California, kicked off our series with a guest post titled When Mothers Cry Rescue.

Last week, Tamara, mother of seven, was honored with a family photo session and beautiful tribute from her husband and children in this post!

This week, we continue the series with a guest post from the mama of a five-year-old boy who has autism. I met her three years ago and have followed her closely online since. Being a speech-language pathologist, I greatly admire the authenticity and bravery she demonstrates as she faces daily joys and challenges of raising a son with autism. I invited this mama to guest post anonymously because I wanted to grant her complete freedom to open her heart and share her journey without fear.

This mama once held a blog that was converted to a simple Facebook page called MNAutismMom. Click “Like” if you would like to follow her journey. If you have questions or comments for this mama, you are more than welcome to place a comment at the end of this blog post.

IN THE BEGINNING

Before I had my first and only son, I imagined that a baby was just one more thing on my “to-do” list.

After the exhausting activity of labor, I started to devour my baby books like I was cramming for some sort of exam. I was freaking out. I realized I didn’t know how to change a diaper and didn’t have a clue about a baby’s feeding schedule. I was happy to be naïve up until the day he was born, but I was unprepared for the test on June 13, 2007.

Of course, raising a child is not a test, but a non-stop life journey that has completely altered my world which has been just as hard as it has been good. And now I sound like a cliché. But, that’s the thing. He is a hard child to raise. Life is hard at times. My life had its challenges before this little boy entered the picture, but nothing other than my teaching degree prepared me for a moderately, classic form of autism in my son. And my teaching degree only helped me see the signs of his autism…nothing more.

Unlike most sane people, I did worry about autism before he was born (though I am learning that might not be as unusual as I thought, especially amongst teachers). I remember discussing these concerns with my mother and my friends.

My son didn’t hit any of his milestones on time and by 12 months I was pretty much convinced, but didn’t want to utter the word “autism” to the doctors in case I was wrong, in case I was inserting ideas into their head wrongly, in case I would be written off.

By 22 months, I had a team of people that created a 12+ page document confirming my fears and my Google searches. I cried. I grieved for years and my husband threw up on the side of Highway 494 the day we were told the diagnosis.

Sometimes people want to know how I knew so early. They don’t understand how I got him a diagnosis so early in life, but it’s not that hard to see when your child makes limited eye contact, finds light more interesting than people and isn’t doing most of what a typical child would do.

It really wasn’t hard to see his autism, but the people who didn’t want to see it, didn’t. Every single relationship was damaged and is still in repair. No one says anything appropriate to a special needs parent. My skin, so thin, my emotions transparent. I couldn’t hide my feelings. It was all I could think about initially.

It took me years to figure out that most people will not be able to handle conversations about autism in general (especially when you are grieving and initially finding out). For example, a neighbor would tell me how “normal” his behaviors were and I wouldn’t know to respond. I would read potty training books and my dad would tell me how I was worrying unnecessarily and that I had to learn how to just enjoy my baby. And my relationship with my sister was ultimately one of the most strained because she was always my soft place to fall before my child was born. I eventually just stopped talking to her about him if I could, resorting to only telling her the progress – you know, the good stuff and even that somehow hurt me. Her response? Something about how one day he might get to live in a group home. Wow, thanks.

Just writing this down makes me tear up. There are no social guidelines for telling people about a child’s autism diagnosis. Maybe they are in their own shock and can’t recognize the pain of the parent’s. And that’s the thing, it’s my pain, not my child’s. He doesn’t know he has autism. The pain is all in me. I don’t expect the world to know what to say, how to react, but I had to learn that the hard way.

Sometimes it’s actually the people you don’t know that will be your soft place. The applied behavior analysts (ABA), speech, occupational and physical therapists will be the most supportive, loving and understanding people in your adult life. And no one tells you that all of those other people you thought you knew, will have no idea what to say or do. There will be no casseroles for the grieving mothers and fathers. There will be little said that is appropriate or comforting.

And then, one day, you forgive them. The anger flows over and you realize they didn’t know better.

You learn who to trust.

You learn who to confront and when.

You learn who to let go of completely and move on.

Because he is YOUR CHILD. The one you have been called to love and nurture.

Words do hurt, but the child that people can’t see has special needs, WILL show them over time who he is and is not. And you learn to stop defending your point of view because unfortunately you no longer have to. 

5-YEARS-OLD

In a month, my baby turns 6. This is the first birthday that isn’t making me cringe. The other birthdays were so painful. A reminder of all the milestones he couldn’t accomplish yet. All of the hard work we had left ahead. The fear of the future. What does it all mean?

And as he leaves 5 behind, it was the hardest year to date. I realized at some point, that when he was first diagnosed it was about me. Completely selfish…my life and yes, his too. Autism = language and social deficits, distinct interest in very particular things that override the ability to work on and learn other skills.

When he was little he would hang on me. There was no independence. He recently stopped being fed by adults. He would fall apart, scream, and cry if he wasn’t getting what he wanted. Realize this isn’t a spoiled child, but a child that can’t regulate feelings, can’t communicate. I babied him and it wasn’t until the last 6 months that he started doing more and more on his own. Just this week, I observed him urinate without an adult standing over him and he’s even going without some prompting! It’s been 6 years of having a very dependent child. The years of not being able to make dinner or turn my back on him have just recently become past memories. Speech has finally crept in. He can now answer choice questions “do you want red or blue?” He pretends to talk on the phone and jabbers away despite it not being actual words yet. He amazes me.

But there is still another side we are currently dealing with on a daily basis, which is 5-years-old, the year of self-injury. Two plus years ago it started as a head nod. It wasn’t typical, but it wasn’t a problem either. Last spring it started in the car. He just decided he didn’t like our car rides to and from school and he started to head whip forward, causing a cracking sound.

The doctors didn’t agree – stim, tic? Does it matter? Does he need meds? We started to take him to a chiropractor for self-inflicted whiplash. We started him on medicine for kids with Tourettes, which didn’t work; we even changed his day therapy program to lessen the car ride.

Whiplash eventually led to face slapping, which intensified to the point the school was demanding we get additional supports at home. We were in over our head. “You need more for him, we can’t help you the way you need,” they said. The speech therapist initiated feeding therapy and cancelled it within a month due to his behaviors. It was out of control.

And right when it was over my ability to cope, I started to unravel. No control. Fears overwhelmed me. What happens to your child if you can’t deal?  Christmas was painful. He continually hit himself. No logic. I got a nice chunk of time off for winter and it was horrible. Neurology appointments, another EEG, no answers. How do we live with a child that hits himself over and over again? It’s not painful to watch. It’s unbearable.

It all stopped on January 1.

Two months respite.

And then it was back.

And it got worse, but different. He got a cold or flu. It wasn’t a big deal as far as anyone could observe. It lasted 2 weeks. He lost 7-8 lbs. I thought watching my baby whip his head as hard as he could was intense, but the days he stopped eating were some of the hardest in my life. My husband and I snap at each other hard during these days. Everything holds together by a string. I go to work to forget my life at home is harder than I can handle. I email his school daily to see what approaches, interventions are working or are not. I would take him to the doctor 5 times in 2 weeks. No answers. Blood drawn, hospitalization around the corner, his little skeletal system showing so clearly. Could my son starve himself to death? Should I still be going into work? How long will this last?

And then it just hit me. Stop trying to give him his normal, preferred foods and get him kid approved junk food. And so I did. I gave him the choice of anything. He chose chocolate pudding and I fed him. I was victorious. He moved on to a Pop Tart, Little Debbie cakes, cookies, cake, and ice cream. He didn’t stop. He tried nearly half of the $100 worth of junk food I had just acquired from Target. After the second food, he was finally feeding himself without spitting or injuring himself.

And ever since then, he gained the weight back and we just remember those days as the hardest to date. Luckily for us, not a continuous issue. Just a strange detour on the journey.

WHAT I KNOW

I am relieved, but it’s not over. This new chapter of being 6-years-old begins with a new slew of therapists helping us outside of his normal therapy hours. His head bobbing has turned into a fist-to-chin; he is basically punching himself. His little chin is red and irritated from constant hitting. His knuckles are red too.

It’s painful to watch, and the complexity of this behavior is beyond a regular ole’ parent’s ability. I will make the sacrifices I need to within my marriage, career and social life if that means he can have a safe and happy life.

Autism has many lessons that are just as positive as they are hard. Not only did I learn early in his life that we only have so much control, but we also can’t take things for granted. The biggest lesson learned is how some children never learn to take care of themselves, dependent on others for bathroom needs, dressing and learning basic academic skills. Despite being a teacher, I have learned about a world of individuals I would have frankly not known to exist.

As I learned about these things, the fear grew. Would my child ever talk to us? Have friends? Make his own meals? Graduate from diapers? What if he lives with me forever? Have a job? What school will he go to?

How could I possibly care that my neighbor is going on and on about how her 2-year-old isn’t potty trained when she hasn’t noticed my 5-year-old standing there in a diaper? This is just a small thing. Rude, but forgivable. I want to scream ”BUT HE WILL BE POTTY TRAINED ONE DAY! What if my child never gets out of DIAPERS?”

But, that’s the thing. These things people say to me are just a small part of the bigger picture. I am worried endlessly with a list of what-ifs and those questions burned in my head. But some of the what-ifs and questions have been replaced with beauties I failed at the beginning to know were ahead.

No matter what my son accomplishes, when he accomplishes something I am AMAZED.

I didn’t know that when he first spoke a word it would feel like a MIRACLE. It wouldn’t be kind of cool. It wouldn’t be like – wow, that’s neat. It would feel like my mind was being blown and that it was all going to be ok.

When he walked up to the toilet for the first time this week, lifted the seat and urinated on his own without reinforcement or prompting – it was INSANE. There aren’t words for realizing your son might not live his teen and adult years in diapers.

When he learned how to navigate the You Tube app and play with a preferred toy without an adult it was AMAZING.

The day he stopped asking people to feed him (recently) was UNBELIEVABLE.

My son didn’t willingly crawl until he was 4. His first words were ABC and I love you. He can take his glasses on and off without help, and shows he understands what we say despite being able to speak conversationally. He calls me mommy, sometimes.

There is nothing on this earth that has ever given me joy like watching my son accomplish goals we wanted for him years ago. The lows may be low. They may be lower than non-special needs parents can comprehend or care to know. But I get a gift on the other side of this parenting journey that some will never understand too. For that, no matter how hard it might get, it sure makes those highs even higher. I do wish I could share what that feels like. And I can’t wait to see what else is in store for the chapters ahead.

I love you sweetheart.

 

Vicki Thunstrom - This was so amazingly beautiful. Thank you for sharing a bit of your life with us. It gives me so much perspective on life. When I am frustrated with my own child and having my own pity party, I pray I will remember you and others and pray for your victories along the way. SO many blessings to you and your family.May 21, 2013 – 3:35 am

MNAutismMom - Thank you for taking the time to read and comment on my post.May 18, 2013 – 8:09 pm

Heather Shedivy Hodge - Bless your heart! May 16, 2013 – 3:14 am

Nicole Marie Newfield - This is so insightful. Prayers as you continue this journey!May 15, 2013 – 10:47 pm

Meet This Sweet Little Girl

Today it is my pleasure to introduce you to a sweet girl I see for speech-language therapy. Although I’m unable to show her face or reveal her name because of privacy laws, something that occurred during our therapy session yesterday holds a bit of truth for us all. I’m so grateful her mom has given me permission to share this story here today.

Psychology notes that we are able to identify dominant personality traits in others when we possess those traits ourselves. If that’s true, then I admit I spotted myself in this little girl from the very start. Confident and bold, loving and  sweet, a very hard worker, loves order, and likes to do things her way. A Type A in the making, her mom and I have agreed! I just love this little girl. Sure we butt heads once in a while, but there’s no doubt we work hard together to accomplish a lot in a short amount of time.

So yesterday, when I saw her line up that pile of cards on her lap and get them all just so, in order, I realized once again that our personalities are just as much innate as they are formed. The only truth that makes sense to me when I see a little 4-year-old ordering a pile of cards just so is that she was born that way…she’s an organizer and likes order, and it’s just who she is. There was peace in that observation, an acceptance of myself and that little girl for who we are at our core.

We moved along with the stories on our cards. Moments passed, and before I knew it, this little girl had taken off her boot.

And out from that boot came a construction paper picture!

 A work of art on one side, and her name in big bold letters on the other side. All on a piece of bright red paper.

I asked this little girl, what is a picture doing folded up in her boot? She explained she does this every day! Her teachers say she can only color with crayons, but she uses pencils and crayons. She hides the pictures in her boot so her teachers can’t see.

I look closely at both sides, tell her what beautiful pictures they are, and try to get some more clarity as to why she feels she needs to hide these beautiful pictures in her boots (I know, a little diversion from what you might consider traditional speech therapy, but we were practicing all of our sounds during this whole interaction and she was very proud to share her creation!). She showed me how she folded the picture up all pretty, how she could make it into a bird and fly. Paper wings flapping in the air, “see, it flies!”

Next thing I knew, she said it was time to put it back. She folded it up nicely. I took it and placed it in the back of the boot where her heel would rest, assuming that was the most logical place for a piece of paper in a boot?! “NO,” she said without reservation, “it goes on the bottom!” She put it in the very bottom of the boot, tucked away deep, hidden away nice and flat.

I have yet to discover whether there was truth in her statement that the teachers only allow the children to use crayons, or whether they also allow pencil drawings. But the truth regarding pencils and crayons matters very little as far as I’m concerned.

In fact, what moved me to post this story was the fact that this little girl felt she needed to keep her creation hidden. Clearly so proud. She knew everything about that creation. She knew it could fly and how to fold it perfectly so it would fit in the boot. But why did she need to hide it? Was it simply a fun 4-year-old game of hide and seek? Perhaps. But knowing how intelligent this little girl is, I believe she may have had it hidden for other reasons.

This got me thinking…

How often do we hide away our creations, the gifts we have to offer this world?

Why do we feel the need to hide those beautiful gifts, those beautiful dreams we have for ourselves?

If we know these things are so wonderful, why do we keep them to ourselves, only for others to stumble upon?

What are we doing, as adults, to encourage our children to openly share their creations, their gifts, so others can see?

What are we doing, as adults, to encourage one another to share our gifts?

What good does a gift do if it is hidden away in deep, dark places where nobody can see?

Today, I encourage you. Whether you’re Type A, Type B, or any other through Type Z, take those creations, those gifts out of those boots of yours, and let the world see your greatness!

No one lights a lamp and hides it in a clay jar or puts it under a bed. Instead, they put it on a stand, so that those who come in can see the light. For there is nothing hidden that will not be disclosed, and nothing concealed that will not be known or brought out into the open. Luke 8:16-17

Amy

Amy B. Pederson - Thank you very much Jennifer. And I am beyond glad to see you are also using your gifts in your new business…so exciting!!!December 17, 2012 – 10:15 pm

Sandy Sandmeyer - And a little child shall lead them. Amazing what we learn from the littlest ones.December 14, 2012 – 6:13 am

Jennifer Johnson - Amy, what a Beautiful Post! Clearly you are sharing your “gift” with all of us. Your gift of kindnes… in words and thoughts. Thank you!December 12, 2012 – 10:29 pm

A Gift for Special Mamas

You are a special mama.

I hear you.

I see you.

I understand you.

I am with you.

That look, I recognize it. I see it. The way you look at your child. Your quiet, wondering eyes tell all. The way pain has settled in. What does this child’s future hold? Will everything be ok?

That voice, I hear it. Your anxiety, your worry, your being on the edge every moment. Your wondering who has the answers. Your wondering who can help me with this child? Your need to know you’re not alone. You’re not alone, that’s what you need to hear.

That feeling, I get it. That others simply don’t understand. They know not what you have been through. They know not what your child needs. They know not how to respond. Their understanding of what your child says and does is limited. Not by their own fault, but by virtue of not being you, not being in your shoes. You take not a single thing for granted when it comes to your child. Embrace that gift. Use it to hear, to see others better, more deeply. Live more fully.

That gut horror of yours, stop overanalyzing it. Did you do something wrong? Too much of this, not enough of that? Could you have done something earlier, something more, something better? Could you have prevented this from happening? Would a different parent have been better for this child? Accept this gift from me. You have done nothing. Your guilt is not warranted. Your gut leads you astray. You are the parent your child needs.

That joy of yours, that pride, I sense it. It comes overflowing in that moment. It takes your breath away. You never thought your child could do that, could be so great, could meet, exceed all your expectations. Believe it. Your child can do anything. Anything is possible. That triumph is yours. That triumph belongs to you and your child.

Because you are great.

You are courageous.

You are strong.

You are an amazing mama.

You can do it.

You can do this.

This is hard, but you are doing it.

You are doing it.

You are a special mama.

And I see you.

May the gift be yours to embrace.

But Mary treasured up all these things and pondered them in her heart. Luke 2:19

Amy